Purpose of UC-ReX
UC-Rex is a collaboration among the five UC health sciences campuses which will create, coordinate, and/or manage the clinical data warehouses for Research (CDWR) at each of the campuses. A CDWR enables a researcher to query the Electronic Medical Record of the hospitals and clinics affiliated with his or her home campus, and thus obtain an estimate of how many patients match a specified profile for a contemplated clinical study. UC-ReX will connect these five CDWR.
When completed, UC ReX will allow an investigator at one UC campus, with IRB approval, to access patient data from another campus in a HIPAA-compliant manner. The UC Office of the President is providing $5 million over 5 years to develop these critical tools, which will be managed by UC BRAID (the UC Biomedical Research Acceleration, Integration, and Development consortium). UC-ReX will be the first cross-campus clinical query system, and the largest SHRINE database in the world.
The CTRI’s Biomedical Informatics Division, which is under the leadership of Dr. Lucila Ohno-Machado, has been appointed by UC BRAID to lead the development of UC-ReX. For the first year, the objective is to set up a network for distributed queries across the clinical data warehouses, focusing on demographics, diagnoses, and procedure.
Benefits to Research
- Help investigators solve the common, formidable problem of inadequate numbers of subjects for clinical studies
- Exchange both patient-level data and aggregates (counts and descriptive statistics)
- Scalable
- Researchers from approved partner institutions, in addition to those from UC campuses, will be able to participate in UC-ReX
For More Information
http://www.ucbraid.org/informaticsmdashuc-rex.html
https://www.i2b2.org/work/shrine.html